Wednesday, July 30, 2008
Sunday, July 27, 2008
But I'm so tired of holding back, being nice, and then getting talked about behind my back. I hate some of the things I am put through, but I've tried to make the best of it. I've just come to the conclusion that there was nothing I could do about the situations, so I've pretty much sucked it up, been nice, and bit my tounge.
I'm tired of it. I'm tired of Bitting my Toung!!!!!! I'm a grown woman, I've got my own children, and I've decided I'm NEVER going to do to them what's been done to me. I'm never going to be stubborn. I'm going to love them no matter who they love. I'm going to be there for them. NO. MATTER. WHAT. No matter what life throws my way, I will be here. I will give them the choice to leave and move where they want, and I will always be here. When they need me to listen, I will be there. If they need a hug, I will be there. If it comes to putting their happiness before my own, it will happen. I would rather see them happy, than be happy myself. If they tell me there are things I need to change, I will try my hardest.
I will listen. I will love. I WILL be there. Emotionally. Physically. Mentally. Lovingly.FOUR-EVE-RRRR.
Sorry to be a downer, but I'm having a hard time right now. There are people bogging me down, but there is only one thing I can do about it. Which isn't the right thing. So I sit here, do nothing, and sulk for afew days. Then just let it go...like normal. It's a vicious cycle, but what do I do?
Thursday, July 24, 2008
Tuesday, July 22, 2008
Then it was some time for Pool Fun! Kaitlynn had so much fun!!!!
Then we had to try out the FAST ACTION on my camera, it was fun to catch the kids mid jump! MacKenzie could've jumped all day long!!!
Then Dahrran had a go at it. That boy wouldn't jump unless you were inches from him! I don't know how many times we got kicked. But then later in the night he realized he could touch if he jumped in, and was jumping in like no other!!!!
This is Joel with his two aunts!!!
Well there are some to hold you over. I'm telling you, with this new camera, there probably will be pictures in every post! I'm taking probably 100 a day or so! YIKES for my hard drive!!!! Awesome for the kids' memories!
Saturday, July 19, 2008
But for the pictures that I did add to this! Do you see what I see??? She's officially got her ears pierced. She's been begging us to do it for about 3 months now, and I finally got around to getting it done. It was a spur of the moment thing, when we were out doing our errands, I just decided we'd do it. So of course I didn't have my camera with me, but we got some pictures after we got home! She did awesome, and didn't hardly cry a bit. I don't even think their were tears! If you ask her if she cried she responds, "Just a little bit, it was just a pinch, but it didn't hurt" What a trooper!
Do you see what I see on this picture? Okay so that's what I thought, because I don't see anything either! The ladies that pierced MacKenzie's ears were just like, should we pierce hers too? UM NO! I'm so not ready for that, although I do believe babies with their ears pierced are UBR cute! But, daddy agreed that we could do MacKenzie's and I wasn't going to push it!
This is Dahrran at the "house in town" aka my grandparents house in town. They lived here for a little while before they moved to the place they currently live. It's totally gone down hill, and it was just a safety hazard. The big plans were to burn it down today, so of course I wanted to get a few pictures of it before it was gone! I love all things old, and with charm so this is totally my nature! I wanted to save the windows that were in it, but they were pretty much gone and in such bad shape we couldn't use them! :( But it was fun to get a picture of Dahrran in front of it, and just hopefully he'll have my love for historic buildings.
There it is up in flames this am! It was sad to see it go, but it's safer for the kids in town that would always go to play in it!
I'll try to get the pictures from our trip up, soon! Thanks everyone for their prayers, and wishes through the rough time. It was hard on Joel, and is still taking it's toll on a daily basis, but he will be strong. Thanks again everyone!!! And have a happy rest of the weekend!
Monday, July 14, 2008
Hope everyone has a great week, and we'll "see" you soon!
Sunday, July 13, 2008
Then on Thursday, Kaitlynn and I headed to Joel's parents house to help Aunt Jeanine work on the slide show for their parents. First things first, since it was Kaitlynn's 6 month anniversary, I wanted to get pictures of her head. You can see the difference already!!!!
Then of course I had to get pictures of all the action going on in the living room! See Joel is the youngest of 8, yes I said 8. And so there are 26 grandchildren, all under the age of 13. 7 of which were born in 2007. 6 of which were there on Thursday! So that made 6 babes ages 10 months to 15 months!!!! 3 of which are crawling, and 3 of which are walking! So needless to say it was a crazy house!!! See little Kaitlynn, she is 6 weeks younger than the Quads, Ben, Alex, Olivia, and Grant, seen behind her! Then we've got Erika in the pink, and Lilly in the green.
Then on Sat. we had the Gresham Days Festivities! This year our dear neighbor Amy, asked me to help her chair the local Bike Rally for the kids. In the past they've done a Poker type game, and had the children ride their bikes to different houses, choose a card, and the one with the highest score won. Well we decided to change things up this year. We went for a Treasure Hunt format, and I think it was a hit! We split the kids up into groups, and they had to find clues which lead them back to the beginning. The first team back won first place. Dahrran wasn't going to participate, but then decided he wanted to! I didn't know how well it would go with him trying to keep up with the bigger kids, but he did AWESOME!!!!!! Here's just a few pics from the day!
We ended up with 27 kids participating! It was a great learning experience for me, and I was more than glad to help out!
Dahrran's group came in 2nd place! I was so proud of him!!!
MacKenzie didn't get to ride her bike but did get some bubbles for helping us out!
Friday, July 11, 2008
Thursday, July 10, 2008
Enough of my saga, here's her story! (it's a bit long) Enjoy.
Kaitlynn was born on August 25, 2007 at 9:59am via c-section. Before I (Amanda) had gotten back to recovery, in our room, the nurse had noticed something was wrong with her skull; they couldn't feel a soft spot on the top of her head. We were told this news, and since she was born on a Saturday we had to wait to get any test run until Monday morning. This was the longest weekend of our lives, not knowing what was wrong with our precious little girl. I remember them coming in to get her early on Monday morning, Joel was still sleeping. The nurse came to get her to take her to radiology, for a CT scan, and about 2:00 that afternoon, they came to get her again for another scan that would show them more. We didn't get any answers until our wonderful Doctor came in to tell us what the specialist had said. I remember sitting there, and not even understanding what he said. It was such a blur, he kept talking, and I was hearing him, but I didn't understand a word of it. He wrote down the diagnosis: Craniosynostosis (cranio-sin-no-sa-toe-sis) ( Craniosynostosis is a birth defect of the brain characterized by the premature closure of one or more of the fibrous joints between the bones of the skull (called the cranial sutures) before brain growth is complete. )The nurses at the hospital were wonderful, and even brough in a computer so that we could research the condition via the internet. We spent that night crying, researching and calling family. Everyone wanted to know what it was, and we couldn't even really tell them, because we didn't know ourselves. All I wanted to do was research, research, research, but Joel didn't want to read anything on it, he just wanted to find out what the doctors said. Our Doctor was going to try to get us in touch with a Neurosurgen in Lincoln, that Joel's brothers had went to school with. We thought that would be the best option, but unfortunatly he was no longer doing the surgery because he didn't see enough cases. We then were refered to Childrens Hospital in Omaha. We were told when we left the hospital that someone would be in contatct with us from their office. They called a few days later, and set up the appointment two weeks later.
We then were headed to see a Neurosurgen in Omaha, just two short (long for us) weeks later. He looked at the scans and confirmed her diagnosis, and gave us that it was Sagittal synosis. I don't really remember much about that visit either other than them telling us what we already knew. Remember how I'd said I wanted to research...well I spent almost every day doing it! I wanted to know about it all. We were told that they do two types of surgerys, CVR (cranial vault reconstruction) and Endoscopic Crainectomny (less invasive). But we were told if we wanted to do the Endoscopic surgery she had to be under 6 weeks old. We were also told that it ususally fails, and it's not a good option, because a lot of times they end up doing the CVR months later because it doesn't work. So hearing this information we were planning for the big surgery (CVR). We were told we would be called about an appointment for a Craniofacial Clinic, where we would find out more about her surgery, meet her surgeons, and get everything started. BUT our clinic wasn't until the 29th of October. We were forced to wait 6 long weeks before we would find out when her surgery was. During that time our beloved Doctor passed away, just days before our 6 week post partum check up. Thankfully we found the other doctor that ours had been consulting with on Kaitlynn's condition. We then switched doctors and waited for our Craniofacial Clinic. Our clinc came, and both sets of grandparents came with us for support. It was great to have them there, they asked our surgeons questions I hadn't even thought of. We were told they would get the insurance settled and let us know on a date for surgery. We were looking at about 8-10 weeks before our surgery date, but they would call. We went home, and waited.
Her surgery date couldn't come fast enough. We decided to drive down for her surgery. We headed out on a Tuesday morning, and made it that evening. Kaitlynn did so great on the drive down, and was a perfect little one the whole way. We then had our appointment with Dr. Jimenez on Wed. We had all of our questions answered, and were told what to expect. We were on our way to surgery the next day. We were told to be at the hospital by 7 am, and Kaitlynn was not to have anything to eat after 5am, her surgery was scheduled for 9am. They were running behind, when we got there. Her surgery didn't get started until 12:56, and only lasted 56 minutes. She only lost 2 Tablespoons of blood, and didn't require a blood transfusion. We got to go in and see her about 2:30 or so. She did great, and looked so much different already. When we finally got to hold her we noticed the immediate difference in her head shape. She did great over night, and was realeased at 10am the next morning. Not even 24 hours in the PICU (pediatric intensive care unit). She was a completly different baby, happier, not spitting up as much, and over all just more plesant. We were then fitted for a helmet to reshape her head. We had our post op. appointment 6 days later, and on our way home.
Kaitlynn now is wearing a helmet 23 hours a day, and will be in it for a year to 18 months from her surgery date. She outgrows her helmets, and is already on her 3rd helmet. We need new ones every 3-4 months, and travel to Texas each time for new ones. Kaitlynn is such a big girl, and has just learned to crawl. She was a little bit behind on her development, but is now right on track and growing so quickly. We're hoping to be done with helmets by May of 2009. Kaitlynn will not require any more surgeries, and will grow up to live a normal healthy life. We were told that she does have a higher risk of having a child of her own with Craniosynostosis, but when that day comes we'll need to do Genetic testing. For now we are enjoying her every move, and loving her just the same as we do Dahrran and MacKenzie.
Here is a picture of Kaitlynn a day before her surgery, and a few hours after her surgery, you could see the immediate difference. I haven't taken pictures of her head shape recently, but plan on doing it in the near future.
Wednesday, July 9, 2008
Tuesday, July 8, 2008
Here are the pictures that my dad and sister sent for me! They're the ones who purchased them, this holiday weekend for me at local markets in Seward and Fairbury. I have seen the flag in person and LOVE IT, and will be picking up the other from my sister tomarrow!!! I haven't decided which one I'm going to use yet, but if you win, I'll let you choose!!!!!!!
Good luck everyone! :)
Monday, July 7, 2008
Sunday, July 6, 2008
Friday, July 4, 2008
We went lastnight, and did the whole commercial Fireworks show, and the kids had a blast watching them. Kaitlynn didn't even fuss during them. I figured for sure they'd scare her, but she did great!!!!
Wednesday, July 2, 2008
All I have to say is I'll be letting you all know in due time, in due time! You'll just have to keep checking back here in the next few days/weeks for the answer!!!
The fireworks are here, and I'm sick of them already. Okay so I'm mainly just sick of the idiodic parents that buy fireworks for their kids, and then let them go about setting them off all day/night long. Tonight after tucking the kids in for a long nights sleep, I headed off to take my shower for the day, and come up to find one little monkey...not sleeping at all. When I got to her room she was sitting there crying because their were Fireworks in her room, and they were loud and she couldn't sleep. I felt so bad for her, so I told her it would be okay, and she went to sleep shortly. Thank goodness they were over for the night! She loves to watch the things but when she can't see them out her window, she kind of freaks out!
So everyone what are your plans for the 4th?
Tuesday, July 1, 2008
Sunday was going to be laid back, but then Joel realized that the hay needed to be baled. BUT of course the stinkin baler wouldn't work right again, and after a little working, we decided we'd take the kids fishing. This was our first time fishing as a family, and Joel and I's first time together as a couple. So we needed fishing poles and all the stuff required to go fishing!!! Off we headed to the lake after a short pit stop to by all things fish. It took a while to find the perfect spot, but once we did things went okay. We didn't catch much...okay so it was only one, and I was the lucky winner! But the poor little guy was way too small, so we let him go. We ALL ended up with a little sun burn, even Kaitlynn who I'd lathered up in sun block.
Little Miss Atitude!!!!
This is my FAVORITE Picture of the whole day!!! (and I mean the hubby and kids!)
*SHHH promise not to tell???? I've got a surprise comming up, and I can't wait to share it with you!!!